Today along with Lhen Lhen and 'Ceska' we visited this eighteen month old little girl by the name of 'Vic'. When the child was just a few months old the mother asked a neighbour to babysit for a few hours and has never been back for the child since.
A visit has been made to Dr. Phanu a specialist paediatrician to examine 'Vic' and Dr. Najaiung explained that 'Vic' only has a brain stem. She is capable of eating, smiling, urinating and bowel movements. The fluid on her brain will continue to increase over time, but surgery is not advisable as the risk of complications is high. The discomfort she feels is likely due to bowel problems caused by inactivity. The Doctor prescribed medication to slow the increase of fluid on her brain and help with the stomach discomfort. He recommended daily enemas and said she can eat regular foods. She needs to be moved frequently to prevent sores on her head as this can lead to fluid release and then infection.
She is spasmodic so he has referred 'Vic' to a specialist for treatment. The doctor said that the best case life expectancy for this type case is maybe to 10 yrs. old. 'Vic's' head size, 61 cm, is very large. This affects life expectancy. But with good palliative care her chances increase. Dr. Samchit prescribed meds for constipation, spasms, a sleep aid and vitamins .
The neighbours obviously care a great deal for the child caring for he 24/7 and now have legal custody of 'Vic'.
PSK were asked if we could help purchase a good heavy duty stroller to move her around as she is very heavy, the cost would be in the region of £120-150. As the couple caring for 'Vic' are not able to afford the cost themselves we have agreed to fund the purchase of a suitable stroller which will enable the child to be wheeled about outdoors, at the moment she has to be carried and her weight is be becoming to much for the couple caring for her to manage.
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